The sweet, caring, funny, awesome Nainoa was diagnosed with stage 4 Ewing Sarcoma. Nainoa had been suffering from extreme back pain a month prior to being diagnosed and lost the feeling in his legs.
I was diagnosed in February of 2011 with a very rare type of renal cell cancer called Hereditary leiomyoma renal cell carcinoma. It is so very rare that I am one of 250 people that they know of in the world. I would not be here today if it wasn’t for God who has been by my side everyday.
Who would of thought by starting this blog and sharing the stories of these WARRIORS that it would inspire us to help so many others. Week after week we read so many stories. Our hearts cry for so many people. Each story we come across, we want to do more and more.
Monroe Okola was born on August 15th, 2011… she is 4 years old. Monroe is the daughter of Aaron and Leah Okola. She has a 15 year old brother named Jake and a 10 month old sister named Arden. Monroe is a beautiful, sweet, energetic and happy little girl who loves Disney princesses, riding her tricycle, going to pre-school, and buttered noodles.
The Pink Fireman wasn’t always pink. Wait, what? What do you mean he wasn’t always pink? No folks, The Pink Fireman didn’t get his bright pink colors until April 2011. Before then, The Pink Fireman was… well a fireman.
Wednesday, March 16, 2016 will forever be the most painful day in my existence. One that I easily wanted to follow my daughter to an eternal ever after.
At 6:44 pm, our daughter, Desirae Ava Grace Cechin, was welcomed with open arms by her big brother, Devin, that she never had the chance to meet, up in Heaven.
February 4, 2016, Sami woke up and was complaining that her side hurt. Not thinking too much about it we sprayed some BioFreeze on it and had her lay down thinking I would take her to school late. As the day progressed the pain didn’t really let up so I took her to the walk in clinic at our Doctor’s office.
Today was the day that changed our lives forever. The day that turned our world upside down. The day that our beautiful little Geneva was faced with an enormous challenge that no child should have to face. We started our day at Disneyland.
The results are in, and they are not what we had hoped. Her tumor is not only progressing, it’s much larger then it was in June of last year, after diagnosis. Measurements: June 4.5 x 3.4 x 3.8 cm and today 4.7 x 3.3 x 4.3 cm.
“I have cancer.” Three little words I heard over nine years ago, but I still remember them as if they were said yesterday. My mother had dropped a bomb on me that forever changed my life. She had been diagnosed with stage three breast cancer, on January 9, 2007. That was the day that changed everything.