The results are in, and they are not what we had hoped. Her tumor is not only progressing, it’s much larger then it was in June of last year, after diagnosis. Measurements: June 4.5 x 3.4 x 3.8 cm and today 4.7 x 3.3 x 4.3 cm. She is much better then she was in June and this is why we are positive that the CBD is the only reason we still have a somewhat active child, with less DIPG symptoms. So everyone know, we will continue to research all avenues presented by our many involved oncologists, she had some ideas in her update, possibly upping her Pano dose, and we are moving forward with pursuing Germany as we were before. You’ll understand why, further down.
We need to fund-raise until we are blue in the face, I guess. I don’t know where to begin with that. Katie’s tired too. She cried today, and said she was done and wanted her tumor gone. She was sick of it. Sick of being poked every day. “I’m done. I’m done. I’m done,” her words. I said the same, right back to her. I’m so very much over it. She broke everyone’s heart in the room. The long faces were hard to disguise. The other patients couldn’t look us in the eye, as we cried. One insisted on praying with us right there. It was hard to see and watch. I don’t blame them. I wouldn’t know what to do either. Everywhere we go, I think, do these people know this child is dying. Do they know she may not be here in two weeks. I wouldn’t know, I guess. I want to scream it to the mountains. “Unacceptable! Not my child!!! What did we do to deserve this? Were we not good enough people. Did we not put enough effort into giving to others? Or better yet, what did she do? An innocent child.” I question everything now. None of this makes sense.
I’m unbelievably sad and unsure of how I am going to move forward without my baby, if it comes to that. I have three babies, that’s how this was planned and arranged. And that’s how it should remain. I should not be planning to bury my child. I should not be filling her with poisons, which don’t work anyway. That’s backwards and not how a caring loving relationship works! But it does, in my case, I suppose. I will keep trying. Fighting. Filling her full of things that may or may not help. So we will continue to fight.
Jaime (Katherine’s Mother)
One of the greatest Warriors that we have come to know is Katherine. We will continue to do what we can to show our love and support to her and her family through out this journey. Katherine’s example of strength and determination is relentless. Thank you for sharing your Stripes with us. May we all come together and show you how you’ve made us stronger Warriors. Please comment and show your love for the King family.
A special thanks to SMO Photo for capturing such great moments at Katherine’s 7th birthday bash!
To read more about Katherine you can read our other posts: